About Us

Founded in 1959 by Mary M. Gooley with the help of the Rochester Chapter of the National Hemophilia Foundation (NHF), the Mary M. Gooley Hemophilia Center, located in Rochester, New York, has been serving people who suffer from bleeding and blood-related disorders for over 50 years. Our Center was one of the first chartered NHF chapters, and the first free-standing comprehensive care clinic in the nation. We are in fact one of very few combined treatment centers and chapters in the country.

We pride ourselves on providing first-class treatment, advocacy and research to individuals and families affected by various inherited diseases, including disorders related to homeostasis (blood clotting) and iron overload.

EXPERTISE - QUALITY - VALUE - SUPPORT

These are several of the underlying principles guiding our actions. We constantly strive to increase patient independence through self-care management and to thereby improve the quality of life for our patients and their families. By utilizing a multidisciplinary comprehensive care treatment model, we are able to provide a broad range of services to patients including preventive care, thereby reducing long-term costs to the medical community. Staffed by a select team of highly-trained doctors, nurses and social workers, the Center provides patients with the education and skills necessary to manage their condition, lessen their fears and live normal, active and productive lives.
 

The Services We Provide

• Specialized diagnostic testing
• Expert medical evaluation and diagnosis
• Personal counseling and support groups
• Home care treatment training
• Routine and urgent care
• Coordination of hospitalization services
• Education of school and daycare personnel
• Referrals to appropriate agencies
• Community education and advocacy
• In-service education for medical professionals
• Research to advance knowledge, improve treatment and enhance quality of life for patients and their families

Equally important to what services we provide is how we provide them. Our team is top-notch! We regard ourselves as a family and endeavor to treat our patients in a competent, kind, empathetic and caring way - always going the extra mile to treat, support, educate, train and counsel them.