Links

This section includes direct links to several websites related to coagulation disorders. The section has been subdivided as follows:

• Hemophilia
• Women with Bleeding Disorders
• Platelet Disorders
• Thrombophilia
• Physician Membership Associations
• International Organizations
• Blood Safety
• Hepatitis
• HIV/AIDS
• Gene Therapy

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Hemophilia

National Hemophilia Foundation (NHF)
www.hemophilia.org

HANDI, NHF's Information Resource Center
www.hemophilia.org/NHFWeb/MainPgs/MainNHF.aspx?menuid=35&contentid=25

Centers for Disease Control and Prevention (CDC), Hematologic Diseases Branch
http://www.cdc.gov/ncbddd/hbd/default.htm

The Coalition for Hemophilia B
www.boygenius.com/cfb/

Hemophilia Emergency Care
www.hemophiliaemergencycare.com

Hemophilia Federation of America
www.hemophiliafed.org

Hemophilia Forum
www.hemophilia-forum.org

Inalex Communications
www.inalex.com

LA Kelley Communications
www.kelleycom.com

National Heart, Lung, and Blood Institute (NHLBI)
www.nhlbi.nih.gov

World Federation of Hemophilia
www.wfh.og

Women with Bleeding Disorders

All about Bleeding (CSL Behring-sponsored site for patients with VWD)
www.allaboutbleeding.com

Project Red Flag (NHF)
www.projectredflag.org

Shemophilia
www.shemophilia.org

Platelet Disorders:

Glanzmann Thrombasthenia
www.glanzmanns.com

Hermansky-Pudlak Syndrome Network Inc.
www.hpsnetwork.org

ITP Society
www.ultranet.com/~itpsoc

Platelet Disorder Support Association
www.pdsa.org

Thrombophilia

National Alliance for Thrombosis and Thrombophilia
www.nattinfo.org

Factor V Leiden Thrombophilia Support Page
www.factorvleiden.org

Physician Membership Associations

American Society of Hematology
www.hematology.org

American Society of Pediatric Hematology/Oncology
www.aspho.org

International Society of Thrombosis & Hemostasis
www.med.unc.edu/isth/

International Organizations

Canadian Hemophilia Society
www.hemophilia.ca

Haemophilia Foundation of Australia
www.haemophilia.org.au

Haemophilia Foundation of New Zealand
www.haemophilia.org.nz

Haemophilia Society (UK)
www.haemophilia.org.uk

World Federation of Hemophilia
www.wfh.org

Blood Safety

American Association of Blood Banks
www.aabb.org

America’s Blood Centers
www.americasblood.org

FDA Center for Biologics Evaluation and Research
www.fda.gov/cber

International Blood Plasma News
www.marketingresearchbureau.com/ibpn.htm

National Notification Center
www.notify1.com

Plasma Protein Therapeutics Association
www.plasmatherapeutics.org

vCJD (Variant Creutzfeldt-Jakob Disease)
http://www.cdc.gov/ncidod/dvrd/vcjd/

Hepatitis

American Liver Foundation
www.liverfoundation.org

CDC Hepatitis Branch
www.cdc.gov/hepatitis

HCV Advocate
www.hcvadvocate.org

Hep C Connection
www.hepc-connection.org

Hepatitis B Foundation
www.hepb.org

Hepatitis Foundation International
www.hepfi.org

Hepatitis Magazine
www.hepatitismagazine.com

National Digestive Diseases Information Clearinghouse (NDDIC)
http://digestive.niddk.nih.gov/ddiseases/topics/hepatitis.asp

HIV/AIDS

AEGIS (AIDS Education Global Information System)
www.aegis.com

AIDS Info
www.aidsinfo.nih.gov

American Foundation for AIDS Research
www.amfar.org/index.html

The Body
www.thebody.com

CDC HIV/AIDS
www.cdc.gov/hiv

HIV and Hepatitis
www.hivandhepatitis.com

HIV Insite
hivinsite.ucsf.edu/InSite

HIV + Solid Organ Transplant Multi-Site Study
www.hivtransplant.com

Immune Deficiency Foundation
www.primaryimmune.org

JAMA HIV/AIDS Resource Center
www.ama-assn.org/special/hiv/

National AIDS Treatment Advocacy Project
www.natap.org

National Institute of Allergy and Infectious Diseases
www.niaid.nih.gov/default.htm

Project Inform
www.projectinform.org

Gene Therapy

American Society of Gene Therapy
www.asgt.org

Biotechnology Industry Organization (BIO)
www.bio.org

European Society of Gene Therapy
www.esgt.org

Human Genome Project Information
www.ornl.gov/hgmis/medicine/genetherapy.html

National Human Genome Research Institute
www.genome.gov

National Library of Medicine of NIH
www.nlm.nih.gov/medlineplus/genesandgenetherapy.html

NIH Office of Biotechnology Activities
www4.od.nih.gov/oba

GeMCRIS:
www.gemcris.od.nih.gov