Patient Bill Of Rights
The Mary M. Gooley Hemophilia Center
The Mary M. Gooley Hemophilia Center
PATIENT BILL OF RIGHTS
Under New York State law, patients have certain rights: As a patient of the Center you have the right to:
a) Receive service(s) without regard to age, race, color, sexual orientation, religion, marital status, sex, national origin or sponsor;
b) Be treated with consideration, respect and dignity including privacy in treatment;
c) The Mary M. Gooley Hemophilia Center is a freestanding diagnostic and treatment center which provides treatment, advocacy and research to people affected by hemophilia and other inherited disorders that require hematologic management. Services provided include but are not limited to infusion therapy, phlebotomy, vaccination and patient education, and services for diagnostic treatment as above. Social work is also available;
d) Be informed of the provisions for off-hour emergency coverage; (Call 585- 399-1717 and ask for the Hemophilia physician who is on call);
e) Be informed of the charges for services, eligibility for third party reimbursements and, when applicable, the availability of free or reduced cost care;
f) Receive an itemized copy of your account statement upon request;
g) Obtain from your health care practitioner, or the health care practitioner’s delegate, complete and current information concerning your diagnosis, treatment and prognosis in terms the patient can be reasonably expected to understand;
h) Receive from your physician information necessary to give informed consent prior to the start of any non-emergency procedure or treatment or both. An informed consent shall include, as a minimum provision of information concerning the specific procedure or treatment or both, the reasonably foreseeable risks involved, and alternatives for care or treatment, if any, as a reasonable medical practitioner under the similar circumstances would disclose in a manner permitting the patient to make a knowledgeable decision;
i) Refuse treatment to the extent permitted by law and to be fully informed of the medical consequences of your behavior;
j) Refuse to participate in experimental research;
k) Voice grievances and recommend changes in policies and services to the center’s staff, the operator and the New York State Department of Health without fear of reprisal;
l) Express complaints about the care and services provided and to have the center investigate such complaints. The center is responsible for providing the patient or your designee with a written response within thirty (30) days if requested by the patient indicating the findings of the investigation. The center is also responsible for notifying the patient or your designee that if the patient is not satisfied by the center response, the patient may complain to the New York State Department of Health’s office of Health Systems Management;
m) Privacy and confidentially of all information and records pertaining to the patient’s treatment;
n) Approve or refuse the release of disclosure of the contents of your medical record to any health-care practitioner and/or heath-care facility except as required by law or third-party payment contract; and
- o) Access your medical record pursuant to the provisions of section 18 of the Public Health Law, and Subpart 50-3 of this Title.
p) Authorize those family members and other adults who will be given priority to visit consistent with your ability to receive visitors.
q) Make known your wished regarding anatomical gifts. You may document your wishes in your health care proxy or on a donor card, available from the center.