Mary M. Gooley Hemophilia Center

Caring is in our blood

  • Location
  • Contact
  • Donate
1415 Portland Avenue Suite 500, Rochester, NY 14621
p. 585-922-5700  |  f. 585-922-5775
Mon-Fri: 8am-4:30pm  |  After hours 585-399-1717
  • About Us
    • The Center Today
    • Our History
    • Our Team
    • Board of Directors
  • What
    We Treat
    • Hemophilia
    • von Willebrand Disease
    • Rare Bleeding Disorders
    • Hemochromatosis/Iron Overload
    • Gaucher Disease
  • Our Care
    Model
    • Comprehensive Care Treatment
    • Research
  • Pharmacy
    Program
    • Pharmacy – Patients
    • Pharmacy – Payers
  • Programs &
    Services
    • Support & Education
    • Helpful Resources
    • Patient Assistance Programs
    • Insurance Counseling
    • Camps for Kids
    • Scholarship Opportunities
  • Event
    Calendar
  • Advocacy
You are here: Home > Programs & Services > Camps for Kids with Bleeding Disorders

Camps for Kids with Bleeding Disorders

doube-h-ranchThe Mary M. Gooley Hemophilia Center collaborates closely with unique medical camps in the Upstate New York region. Spending a week at summer camp is a special experience for our patients. At summer camp, children get to meet and play with peers who have bleeding disorders just like them. It’s a place where kids can meet other children with similar conditions and experiences, diminishing the lonely sense of isolation that can come with living with a chronic and misunderstood illness. Camp also empowers children to learn more about their bleeding disorder and can motivate them to take more responsibility for their care. Many children learn to self-infuse at camp, under the close supervision of supportive medical personal. Camps allow children to feel special without focusing solely on their medical condition. Camps are fun, safe places for a kid with a bleeding disorder to simply feel like a kid.

Please note that camps do require a physical exam, often documented within three months of camp. Please contact the Center for a bleeding disorder check-up prior to sending your child to camp.

Nick at CampDouble H Ranch: for boys and girls, age 6-16 years, who may have a variety of acute and chronic illnesses, including a bleeding disorder. www.doublehranch.org

Camp High Hopes: for boys, age 7-17, with bleeding disorders. www.camphighhopes.org

Camp Little Oak: for girls, age 7 to 17, with bleeding disorders.

All three camps listed above run for about a week in the summer and are free of charge for families. Dates of camp may vary from year-to-year. Contact the camp directly for more details or call the Center’s Social Worker with any questions at (585) 922-5700.

In This Section

  • About Us
    • The Center Today
    • Our History
    • Our Team
    • Board of Directors
  • What
    We Treat
    • Hemophilia
    • von Willebrand Disease
    • Rare Bleeding Disorders
    • Hemochromatosis/Iron Overload
    • Gaucher Disease
  • Our Care
    Model
    • Comprehensive Care Treatment
    • Research
  • Pharmacy
    Program
    • Pharmacy – Patients
    • Pharmacy – Payers
  • Programs &
    Services
    • Support & Education
    • Helpful Resources
    • Patient Assistance Programs
    • Insurance Counseling
    • Camps for Kids
    • Scholarship Opportunities
  • Event
    Calendar
  • Advocacy

How To Get Involved
Announcements
Announcements
Announcements
Announcements

Save the Date!

Stay Tuned!
Announcements

United Way Campaign 2023

Thank You!
Announcements

Important Health Insurance News!

Important News!

Contact

TEL 585-922-5700
FAX 585-922-5775
Mon-Fri: 8am-4:30pm
After hours 585-399-1717

Address

1415 Portland Avenue Suite 500
Rochester, NY 14621

Connect

Facebook Twitter YouTube
How to Get Involved
Donate
© 2023 Mary M. Gooley Hemophilia Center | Privacy Policy | HIPAA Privacy Notice | Compliance Policy | Patient Bill of Rights | Protections Against Surprise Medical Bills