NHF Has a New Name!
In an effort to be more inclusive to ALL inheritable bleeding disorders, the National Hemophilia Foundation is now the National Bleeding Disorders Foundation. Click here to learn more about their 75 year history and details on their new rebrand.
Walk Registration is Now Open!
Registration for our 2023 Bleeding Disorders Walk is NOW OPEN! Click here to visit our Walk page to learn more and register today!
2023 Annual Report
Check out our 2022 Annual Report to review learn what’s been happening at the Center this past year.
2017 Woman of Distinction
Congratulations to Mary Gooley for being honored as one of New York’s 2017 “Women of Distinction!”
Advice From Those Who Know
Living with a bleeding disorder can pose challenges. This video from NHF will allow you to hear insight from individuals and families who have successfully met the challenges they faced learning about and living with a bleeding disorder.
Ins and Outs of Joint Bleeds
NHF’s “Steps for Living” website has a wonderful new educational video about joint bleeds. Check it out to learn more!
What is von Willebrand Disease?
Learn essential information about von Willebrand Disease, including signs and symptoms, sub-types and treatment options
2022 Bleeding Disorders Walk
Thanks to everybody who joined us at our 2022 Bleeding Disorders Walk! Check out some great photos of this spectacular event here!
60th Anniversary Celebration
Thanks to all who joined us as we celebrated 60 years of service to the Rochester-area bleeding disorders community!
4th Annual Bleeding Disorders Walk & 5K Fun Run
Check out these great pictures from our 2019 Bleeding Disorders Walk & 5K Fun Run at Genesee Valley Park!
2018 Finger Lakes Adult Triathlon
Thanks again to the hundreds of triathletes who competed at the the 2018 Finger Lakes Triathlon! Check out these great photos from another successful event!
