Advocacy occurs in many forms, from talking informally with others about your health condition to meeting with government officials around specific questions and issues. Periodically the Center collaborates with different groups to visit officials in Albany and Washington, DC to educate lawmakers about challenges faced by people we serve. To find out more about these activities and about other advocacy opportunities, read more here and contact Tom Wilmarth at Thomas.Wilmarth@rochesterregional.org
Serve on the Board of Directors
Board members embody the mission and vision of the organization. The Board is responsible for strategic oversight of all Center operations. The people we serve rely on the Center for service and support as they cope with serious, chronic health conditions.
Throughout a Board member’s term, they will engage in at least three basic roles: oversight (when the full board meets to determine policy), implementation (individual members may be delegated a specific task, including committee service) and volunteer (assisting with operational details, perhaps raising money, interacting with government officials or promoting and helping out at special events). The full Board’s primary role is guidance and leadership. Individual board members add their perspective and knowledge to group deliberations by participating in Board and Committee meetings to support effective, informed group processes.
Board members serve three-year terms that typically begin at the Center’s Annual Meeting in June each year. To learn more about the Center’s Board, talk with a board officer or contact the President/CEO at Thomas.firstname.lastname@example.org
Financial donations from people like you are vital to the Center’s financial well-being. Thank you in advance for your generous support. Your support makes a difference to people affected by bleeding disorders and iron overload.
There are multiple ways to donate: via our website www.hemocenter.org/donate, the Bleeding Disorders Walk, the Center’s Annual Appeal, or via the United Way of Greater Rochester. Follow instructions and links on the United Way website. At the top right, select “Donate Now” and again, on the left, select “Donate Now.” Complete the form and in the section called “Select Where Your Donation Is Going” click on “Add Agency” (enter “Mary M. Gooley Hemophilia Center” and the Center’s UW agency ID number 156). Or, during your employer’s annual UW Campaign, follow instructions for Donor Designation to designate the Center as recipient of donations withheld from your payroll- the Center’s UW agency ID number (Code) is 156. Also, you can donate directly to the Center (check, credit card or in-kind donation) to Mary M. Gooley Hemophilia Center 1415 Portland Avenue Suite 500 Rochester, NY 14621 585-922-5700. Contact the Center’s President/CEO, Tom Wilmarth (585-922-5700) or email@example.com for more information.
The Center benefits from volunteer involvement – if you are willing to commit time and energy, you can use your skills and abilities to help us help others. Because the Center is a health care provider sensitive to privacy rules and regulations and respectful of our patients’ privacy, volunteer opportunities in our office are limited but not out of the question. Contact the Center to explore what role you might play.
Important volunteer roles are on the Center’s Board of Directors and committees. Committees currently active and seeking participants include the Center’s Finance Committee, Compliance Committee and Fundraising Committee. Also, there is a Committee engaged to hold an annual special event, a Bleeding Disorders Walk – Every Step Counts (www.RocEveryStepCounts.com).
To learn more about becoming involved with any of these groups, please contact our Social Worker and VP of Clinical Services, Eric Iglewski, at Eric.Iglewski@rochesterregional.org.