Bulletins

We’re excited for our 2023 Bleeding Disorders Walk! Save the date: Sunday, September 10, 2023. Stay tuned for more details to come…!

Please consider supporting the Mary M. Gooley Hemophilia Center by giving to the United Way and selecting Donor Choice Organization #156. You can give through a work campaign or donate directly at the United Way of Greater Rochester website (just click this box!). Thanks so much for for your support – caring is in YOUR blood!

Attention all New York Medicaid, Child Health Plus, and Essential Plan enrollees: you MUST now take action to renew your health insurance! If you have questions about your health insurance coverage, don’t hesitate to call the Center social worker, Eric Iglewski @ 922-5700. Click here to learn more.

Thanks to you, our 2022 Bleeding Disorders Walk was a huge success. Click here to see some wonderful photos from this amazing event.

NHF’s online education provides free quality education on issues that matter to all members of the bleeding disorders community. These webinars and webcasts bring the experience of expert providers and your peers directly to you. Click to explore NHF’s vast educational webinar library today.

It’s back! We hope you can join us for our 2022 Annual Holiday Party on Tuesday, December 6 at DoubleTree Hotel. Click here to learn more.

We’re thrilled to once again host our Fall Family Fun Day on Saturday, October 15 at Wickham Farms for our pediatric bleeding disorder patients and their families. Click here to learn more and to sign up today!

Check out the Center’s 2022 Annual Report here!

Many thanks to everyone who supported our 2022 Bleeding Disorders Walk. Whether you were a walker, donor or sponsor, you helped make a BIG difference in the lives of patients with rare bleeding disorders. Caring is in YOUR blood! Stay tuned for photos that commemorate the big day…

Please join us for this year’s Mary M. Gooley Hemophilia Center Annual Meeting, in-person on Friday, June 10th. It’s a great opportunity for our community to get together and catch up on the year’s news at the Center. Click below to learn more.

If you receive care at the Center for hemochromatosis or iron overload, we need your feedback! Help us improve your patient care experience by completing our satisfaction survey. It will only take a few minutes and your honest opinions will provide critical input to help us make the Center better for all patients. Click below to take the online survey!

March is National Bleeding Disorders Awareness Month! We invite you to start the conversation around issues and experiences related to inheritable blood or bleeding disorders. Help raise awareness – click here to learn more…

The past year brought many challenges and opportunities to the Mary M. Gooley Hemophilia Center and our community. Click here to review our 2021 Annual Report and learn more about our recent endeavors.

Thanks to everyone who joined us for this year’s “virtual” Annual Meeting. If you missed it, you can watch a recorded version by clicking here.

This June marks the 40th anniversary of the first identifiable cases of HIV. This crisis tragically impacted people with bleeding disorders and their families. We honor those who were impacted by this health crisis and will never forget. Click here to learn more and read a formal statement from the National Hemophilia Foundation.